Jane's story

Taking control and enjoying life again

Jane* has started feeling better after taking more control of her life

Since developing Fibromyalgia, I’ve lost confidence in arranging social activities as I’m worried that I’ll have to cancel or don’t know how I’ll feel.  I’ve lost confidence in doing anything really.

My coach supported me in talking to my family about ways to accommodate my Fibromyalgia – for instance, when going for walks planning shorter walks or finding somewhere I could sit while they carry on walking; or letting them know that I’d love to come but that I may need to say how I feel at the time (without feeling that I’m letting them down). 

I’ve also started looking into local craft classes and volunteering at a local community café and have even managed to get away for a few days without feeling apprehensive about it, which felt great.

This has all helped me to build my confidence around managing life with Fibromyalgia and I feel I’m taking things in my stride a lot more now.

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*People have kindly agreed to share their stories but names (and other identifying details, where appropriate) have been changed for privacy purposes. Note to participants:  if you would like us to make an amendment to your story for privacy or accuracy purposes, please contact your coach via the relevant service. Photographs courtesy of John Birdsall Social Issues Picture Library.

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This is a FREE service provided by NHS High Weald Lewes Havens Clinical Commissioning Group in a partnership with the GP surgeries in Lewes:

St Andrew's Surgery

School Hill Medical Practice

River Lodge and Anchor Fields Surgeries

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